Deb’s Story

Deb's Story Cover

‘Of course you will be involved in what care you receive,’ my mum said not long after I was told I had the long-term condition … View Article

Robyn’s story

Robyn Cover

In 2006, at the age of 21, my life was turned completely upside down. I had a car crash and broke my neck, sustaining a … View Article

Declan’s story


Declan’s diagnosis of Duchenne Muscular Dystrophy meant he relied on two carers for all moving and handling needs. He relied heavily on his mum for … View Article

Martin’s story


Martin was unhappy with his wheelchair. Not only did it cause him discomfort, it was not suitable for the activities he wanted to pursue. He … View Article

Mason’s story


Mason had been an inpatient for 18 months, and wanted to make sure his discharge was successful. His support team and family worked together to … View Article

Shelley’s story


Shelley had a pattern of hospital admissions, and was receiving section 117 aftercare. A different conversation with her helped her to identify a personalised package … View Article

Malcolm’s story


My father Malcolm was diagnosed with frontotemporal dementia shortly after retiring. Within two years he’d been placed in care under section, with little hope of … View Article

Gina and James’ Story

Gina’s son James has Lennox-Gastaut syndrome and left school last year. He now uses both a personal education budget and a personal health budget to … View Article

Mark’s Story

Three years ago my brother was assaulted leaving him with complex needs and severe brain damage. We had to learn quickly but he is only … View Article

Thomas’ Story

Our son Thomas has profound and multiple learning disabilities. More traditional systems of support through a care provider… View Article

Stephen’s Story

In 2008, Stephen had an accident and sustained a spinal injury, which left him tetraplegic and completely paralysed from the shoulders down. After 3 months … View Article

Valerie’s Story

I’m 63 years old and been differently-abled from birth with Spinal Muscular Atrophy Type 2, which is a progressive and degenerative muscular condition that causes … View Article

Andrew’s Story

My son Andrew was aged three when he had a minor operation which left him with a severe brain injury. The NHS care could be … View Article

Peter’s Story

Peter worked as an engineer before qualifying as a teacher of craft, design and technology, which took him to the Bahamas. It was whilst living … View Article

Mitchell’s Story


When my son, Mitchell, was born twenty years ago, I joined a ‘community’ of people whose lives have been transformed by the birth of a child with complex needs... View Article